[Hiring] Vice President, Technology @MUSCULAR DYSTROPHY ASSOC INC

Role Description

The Vice President of Technology leads the evolution of MDA’s technology and data capabilities to better support its mission, scale its programs, and improve how work gets done across the organization.

• MDA operates across a broad set of activities, including fundraising, research funding, care support, community engagement, and advocacy.
• This role is responsible for strengthening and connecting these capabilities to operate with greater clarity, speed, and impact.
• Serves as a close partner to business leaders, working across fundraising, finance, research, and patient services.
• Focuses on enabling teams to work more effectively by improving system usability, increasing data visibility, and reducing reliance on manual processes.
• Requires a strong technical foundation, including a working understanding of enterprise application architecture, system integrations, and data flows across platforms.
• Engages deeply with systems design decisions and guides architectural tradeoffs.
• Partners with leadership to leverage technology for innovation and strategic impact.
• Hands-on leadership role that combines strategy, execution, and collaboration.

Qualifications

• Bachelor’s degree in a relevant field
• 12+ years of experience in technology leadership roles
• Proven experience building and leading a high-performing, full-spectrum IT team spanning applications, infrastructure, data, security, and support services
• Strong understanding of enterprise application architecture, system integrations, and data models
• Experience managing enterprise platforms, including CRM systems such as Salesforce
• Experience with IT governance and budgeting
• Experience working directly with business leaders on cross-functional initiatives

Requirements

• Improve and connect core systems, including CRM, financial platforms, research systems, and operational tools
• Translate business processes into scalable, well-integrated technology solutions
• Define and execute a technology roadmap focused on reliability, usability, and long-term scalability
• Establish and strengthen data capabilities to improve reporting, transparency, and decision-making
• Lead delivery of technology initiatives with clear priorities, timelines, and outcomes
• Ensure infrastructure and cybersecurity practices support a secure and reliable environment
• Ensure Salesforce is effectively configured, governed, and integrated to support fundraising, donor management, and reporting needs
• Manage vendor relationships and technology investments with a focus on value and performance
• Build and lead a technology team that is responsive, accountable, and aligned with organizational needs
• Develop and oversee IT governance practices, including standards, policies, and controls to ensure security, compliance, and effective use of technology resources
• Partner with leadership to develop and manage the technology budget, including forecasting, prioritization, and cost optimization strategies
• Support organizational compliance with applicable regulatory, legal, and data privacy requirements

Benefits

• Medical, Dental and Vision insurance with prescription coverage
• Health Savings Account with contribution matching and Flexible Spending Accounts for medical and/or dependent care
• Paid sick leave
• Employee Assistance Program (EAP)
• 100% contribution towards basic life insurance, short-term and long-term disability
• Optional additional life insurance and dependent life insurance available
• 403(b) Retirement Savings Plan with company match
• Generous paid time off policy, with an increasing accrual rate schedule
• Paid holidays
• Standard 35-hour work week with flexible hours
• Remote, work from home opportunities
• Professional Learning and Development opportunities, including Leadership skills