[Hiring] Patient Advocacy Manager @Lumanity

Role Description

The Patient Engagement and Communications Team at Lumanity has the pleasure of working directly with clients and patient communities to amplify patient voices. The Patient Advocacy Manager (internally known as "Patient Community Manager") is an essential role that serves as the primary and direct point of contact for patient advocates, ambassadors, and influencers—responsible for managing all patient/caregiver relations.

Responsibilities:

• Patient Management:
  • Serve as the primary point of contact for patients and, when applicable, caregivers, healthcare providers, and advocacy organizations.
  • Understand each disease area and patient journey to support patient engagement, ensure their voice is accurately represented, and recognize condition-specific day-to-day needs and quality-of-life considerations that may impact how patients navigate care and daily routines.
  • Assess patient strengths, stories, and readiness; match to appropriate client/program needs.
  • Support patients in fulfilling contractual obligations and preparing for engagements.
  • Coordinate and reinforce presentation skills coaching and training to ensure patient representatives are confident and effective.
  • Monitor performance and engagement quality, addressing issues promptly and professionally.
• Client Relations:
  • Partner closely with Client Strategic Services to align patient representative activities with client objectives and brand initiatives.
  • Communicate with client (pharmaceutical company) representatives regarding patient engagement needs, expectations, and onsite coordination.
  • Support execution of client-facing events (e.g., educational programs, internal meetings, photo/video shoots) and represent the program professionally onsite.
  • Translate patient insights into practical recommendations that improve client strategies and solutions.
  • Proactively identify improvements to better meet client needs and enhance service delivery.
  • Multitask across concurrent projects in a fast-paced environment, consistently meeting deadlines.
• Program Coordination:
  • Own end-to-end management of patient community engagements and related projects (from needs assessment through execution and wrap-up).
  • Accountable for providing direction to Meetings Logistics team to plan and implement logistics for projects, including scheduling, travel coordination, and adherence to travel guidelines.
  • Coordinate across internal teams to deliver on timelines and requirements.
  • Support annual patient training summit or other ongoing training initiatives.
  • Facilitate the expense process and ensure smooth operational follow-through.
  • Contribute to process optimization and update SOPs to reflect changes in policies, procedures, and brand initiatives.
• Compliance/Reporting:
  • Complete and adhere to required compliance trainings (e.g., HIPAA/Privacy & Security, Sunshine Act, Adverse Event reporting, FDA/FTC promotional requirements, internal policies).
  • Handle PHI/PII appropriately; maintain contracts, health records, and personal data in accordance with HIPAA and applicable privacy standards.
  • Ensure Adverse Events are identified, escalated, and reported per client requirements and internal process.
  • Maintain up-to-date contracts and track expirations to prevent lapses in eligibility/engagement.
  • Ensure financial and expense activities follow internal policy and client requirements.

Qualifications

• Bachelor’s degree from an accredited university.
• Minimum 5 years of experience within a life sciences agency or patient advocacy, patient engagement or patient communication consulting firm, or advocacy organization working directly with patients.
• Experience working with pharmaceutical or biotechnology companies is a plus.
• Experience working directly with patient advocacy groups, patients, and caregivers; empathetic tone and demeanor.
• Attention to detail and ability to handle coordination responsibilities over different project requirements/project functions.
• Comfort and confidence in the daily use, application, and potential of AI.
• Understanding of FDA and HIPAA guidelines as well as health literacy principles.
• Ability to travel: 35-40%.

Benefits

• Competitive salary plus bonus scheme.
• Medical, dental, and vision insurance options.
• 401(k) plan with employer match.
• Flexible paid time off program + 10 paid holidays.
• Flexible spending accounts for health and dependent care.
• Health savings account option with employer contribution.
• Employee Assistance Program.
• Paid short-term and long-term disability coverage.
• Company-paid life insurance coverage at 1.5x annual salary.
• Paid parental leave and more.